Nicole Johnson

Nicole Zeitzer Johnson is on a mission to help children understand disabilities, medical complexities, and the importance of inclusion. Nicole's "Joyfully Josie" book series draws inspiration from her daughter, Josie, who was born with a rare neurological genetic disorder called FOXG1 syndrome, which causes many disabilities. Nicole observed that young children often seem afraid and uncomfortable when meeting Josie. This realization motivated Nicole to create tools for parents and educators to...See more

Nicole Zeitzer Johnson is on a mission to help children understand disabilities, medical complexities, and the importance of inclusion. Nicole's "Joyfully Josie" book series draws inspiration from her daughter, Josie, who was born with a rare neurological genetic disorder called FOXG1 syndrome, which causes many disabilities. Nicole observed that young children often seem afraid and uncomfortable when meeting Josie. This realization motivated Nicole to create tools for parents and educators to guide children towards understanding, empathy, and inclusion. The "Joyfully Josie" series aims to turn these moments of unfamiliarity into joyful experiences.In 2017, Nicole co-founded the FOXG1 Research Foundation, which is accelerating research to find a cure for FOXG1 syndrome and related disorders, including Autism. The foundation has risen rapidly in prominence, partnering with the Chan Zuckerberg Initiative.Before becoming a champion for rare diseases and disabilities, Nicole was a television producer and co-founded the streaming music service, Qello Concerts, collaborating with top musicians and celebrities. Today, she's a vocal advocate, speaking to audiences about disability inclusion and her personal journey as a mother in search of a cure. Nicole resides in New York with her husband, Richard, their son, Tanner, and Josie. See less