Breathe Easy is a book in diary format documenting the last year of life of the author's brave wife, Melissa (1975-2008). During her 13-week pregnancy scan, Melissa was diagnosed in August 2007 with Tuberous Sclerosis Complex (TSC) and Lymphangioleiomyomatosis (LAM). She suffered epilepsy from a very young age, though it was largely controlled with medication. The diagnosis of TSC explained the epilepsy, and the diagnosis of LAM explained the breathing difficulties she started to experience. The diary starts at the time of ...
Read More
Breathe Easy is a book in diary format documenting the last year of life of the author's brave wife, Melissa (1975-2008). During her 13-week pregnancy scan, Melissa was diagnosed in August 2007 with Tuberous Sclerosis Complex (TSC) and Lymphangioleiomyomatosis (LAM). She suffered epilepsy from a very young age, though it was largely controlled with medication. The diagnosis of TSC explained the epilepsy, and the diagnosis of LAM explained the breathing difficulties she started to experience. The diary starts at the time of diagnosis. It is about the emotional journey of a young woman coming to terms with a horrific disease, battling through an unforgiving and remarkable pregnancy, enjoying the birth of her baby boy, being assessed for lung transplantation, and finally being told there was no longer any hope of survival. Throughout these experiences, Melissa was dealing with roller-coaster emotions, including the symptoms of LAM, as well as her baby's progress from a 10-week-early birth, through incubator care to being ready to come home. Breathe Easy calls attention to the lack of organ donors in the UK, raises awareness of this very rare disease and cites the need for donations to LAM Action, the registered charity that supports and helps those with LAM to fund research and drug trial programs. About the Author: Paul Arnold is a musician in Southeast England. "Miles is our son. He managed to keep Melissa and me smiling throughout difficult times. For a baby that spent most of his first year sitting at the end of his mum's hospital bed, he did a great job of smiling and being a happy little chap." publisher's website: http: //sbpra.com/PaulArnold
Read Less
